The Congressional Personalized Medicine Caucus and the Personalized Medicine Coalition co-organized a Congressional briefing on February 26, 2020, titled "Technologies Advancing the Future of Personalized Medicine."
The Congressional Personalized Medicine Caucus and the Personalized Medicine Coalition co-organized a virtual Congressional briefing on June 30, 2020, titled "The Personalized Medicine Community's Response to COVID-19."
The Congressional Personalized Medicine Caucus and the Personalized Medicine Coalition co-organized a virtual Congressional briefing on April 28, 2022, titled "Promoting Innovation and Delivery of Cell and Gene Therapies."
At the United States Capitol on December 5, the co-chairs of the Congressional Personalized Medicine Caucus organized a briefing in cooperation with the Personalized Medicine Coalition to help educate their colleagues in the House and Senate about the importance of adopting public policies designed to alleviate educational, reimbursement, and clinical adoption challenges that make it difficult for clinicians to take full advantage of emerging opportunities in personalized medicine. The briefing featured remarks from leaders in academia, patient advocacy, and the diagnostics industry.
Jillian McKee, M.D., Ph.D., a Pediatric Epilepsy Fellow at the Children's Hospital of Philadelphia, will deliver this presentation on data-driven approaches to reconstructing disease trajectories in SYNGAP1-related disorders.