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On March 17, 2016, Senate Health, Education, Labor and Pensions Committee Chairman Sen. Lamar Alexander introduced a bill to provide for the implementation of President Obama's Precision Medicine Initiative. The bill encourages the Department of Health and Human Services to move forward with the initiative, and requires the National Institutes of Health (NIH), the Food and Drug Administration (FDA) and the Office of the National Coordinator for Health Information Technology to collaborate as they do so.
» S2713: A Bill to Provide for the Implementation of a Precision Medicine Initiative
FDA Commissioner: Personalized Medicine Will Transform Rare Disease Trials
FDA Commissioner Robert M. Califf, M.D., M.A.C.C., said he believes personalized medicine will impact the design of future clinical trials as well as the delivery of bedside care. Califf noted that rare disease trials may become smaller as a result of advances in the field.
» U.S. News & World Report
Biden Names Prominent Personalized Medicine Advocate as Executive Director of 'Moonshot'
Vice President Joe Biden recently announced that Greg Simon, who was a prominent voice for personalized medicine as President of FasterCures from 2003 - 2009, will serve as the executive director of Biden's "Cancer Task Force." Simon is a former PMC Board member.
» The New York Times
Focusing on the Foundation's Genomics of Young Lung Cancer study, Bonnie J. Addario Lung Cancer Foundation Chair & Founder Bonnie Addario championed the value of personalized medicine for advancing oncology research in an article in The Huffington Post and interview in The Washington Post. Nearly 80 percent of the 74 young adults in the study tested positive for some form of genetic alteration, which Addario said demonstrates the importance of genetic testing for young adult cancer patients.
» The Huffington Post
» The Washington Post
National Patient Advocate Foundation Hires Gwen Darien
In an effort that the National Patient Advocate Foundation (NPAF) says will help its advocacy and policy activities develop synergies with the patient service programs of the Patient Advocate Foundation (PAF), NPAF has hired Gwen Darien as its executive vice president for patient advocacy.
» NPAF statement
Change Healthcare CEO Testifies for House Subcommittees
Change Healthcare CEO and PMC Board member Neil de Crescenzo recently testified for the U.S. House of Representatives Oversight and Government Reform Subcommittees on the need for interoperable health IT, arguing improvements could support value-based care.
» Healthcare Leadership Council statement
Wall Street Journal
Genetic Testing Helps Oncologists Tailor Treatments
Wall Street Journal
Pharmacogeno- mics Targets Common Medications