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public policy issues impacting personalized medicine

overview • health information technology • intellectual property • regulatory oversight • research funding and support • public and private sector reimbursement • privacy, confidentiality and patients' rights • payer principles • CLIA and genetic testing • comparative effectiveness • incentives for personalized medicine • consumer genomics •

Healthcare Information Technology (HIT)

Policy Position

Date: June 10, 2006

The Personalized Medicine Coalition actively supports the creation of a national health information network that enables the interoperable exchange of digital biomedical information securely between a diverse set of stakeholders in the healthcare ecosystem. Improved health outcomes and increased efficiency will result from evidence-based practice in a quality-centered health system that is powered by interoperable health information technology. Widespread adoption of electronic health records will play an important role in the quality-centered transformation of our health system, and empower patients and physicians with information to make optimal treatment decisions. By improving predictive and preventive care and supporting effective approaches to disease- and care management, HIT holds promise to improve the quality and value of healthcare. This infrastructure should also take into account the unique needs of the basic, clinical and translational research community. By recognizing the value of supporting this community with secure, consented clinical outcomes information, HIT will accelerate new personalized medicine breakthroughs into practice, as well as support patient and physician access to new medical technologies and information.